First conference for patients with cicatricial alopecia a stunning success
LOS ANGELES – August 19, 2005 – The Cicatricial Alopecia
Research Foundation held its first patient conference last weekend
at the Embassy Suites in South San Francisco. The conference had
55 participants, mostly patients, some who traveled from as far
away as Texas, Florida and Hawaii.
CARF Chief Executive Officer Sheila Belkin said, “We received
rave reviews from those who participated in this historic event!
The speakers and the medical panelists added immeasurably to the
support of the patients and their families. A fun filled auction
was a highlight, and added to this wonderful occasion! As a result,
we plan to have other regional conferences in the near future.”
The CARF Conference provided patients with the opportunity to
meet other patients, learn about the latest treatments and cosmetic
solutions, ask questions of renowned clinicians and researchers,
participate in small group discussions and share experiences and
support.
The featured medical speakers and panelists were Drs. Jerry Shapiro,
Vera Price, Paradi Mirmirani, Ken Washenik, Maria Hordinsky, Andrea
Willey and Elizabeth Ross. Conference sponsors included Astellas,
Bosley, Hill Dermaceuticals, Inc., Anita Artstein-Dunsay PsyD
and an anonymous donor. Dozens of businesses made contributions
to the silent auction that raised money for education and research.
About
the Cicatricial Alopecia Research Foundation
The mission of the Cicatricial Alopecia Research Foundation
is:
- to provide funds for research to find effective treatments
and a cure
- to support education and advocacy
- to raise public awareness
Founded in 2001, the Foundation has offices in Los Angeles, and
works to access patients, the medical community and the public
through its website, Patient Conference and association with leading
researchers and clinicians. The Foundation’s commitment
to research is reflected through participation in scientific meetings,
and its research program that will provide grants to investigators
around the world who seek to enhance our knowledge about this
difficult group of diseases. For more information, please visit
http://www.carfintl.org/
CONTACT:
Sheila Belkin
sheila@carfintl.org
(310) 475-2419
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