first conference for patients with cicatricial alopecia a stunning success
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First conference for patients with cicatricial alopecia a stunning success

LOS ANGELES – August 19, 2005 – The Cicatricial Alopecia Research Foundation held its first patient conference last weekend at the Embassy Suites in South San Francisco. The conference had 55 participants, mostly patients, some who traveled from as far away as Texas, Florida and Hawaii.

CARF Chief Executive Officer Sheila Belkin said, “We received rave reviews from those who participated in this historic event! The speakers and the medical panelists added immeasurably to the support of the patients and their families. A fun filled auction was a highlight, and added to this wonderful occasion! As a result, we plan to have other regional conferences in the near future.”

The CARF Conference provided patients with the opportunity to meet other patients, learn about the latest treatments and cosmetic solutions, ask questions of renowned clinicians and researchers, participate in small group discussions and share experiences and support.

The featured medical speakers and panelists were Drs. Jerry Shapiro, Vera Price, Paradi Mirmirani, Ken Washenik, Maria Hordinsky, Andrea Willey and Elizabeth Ross. Conference sponsors included Astellas, Bosley, Hill Dermaceuticals, Inc., Anita Artstein-Dunsay PsyD and an anonymous donor. Dozens of businesses made contributions to the silent auction that raised money for education and research.

About the Cicatricial Alopecia Research Foundation

The mission of the Cicatricial Alopecia Research Foundation is:

  • to provide funds for research to find effective treatments and a cure
  • to support education and advocacy
  • to raise public awareness

Founded in 2001, the Foundation has offices in Los Angeles, and works to access patients, the medical community and the public through its website, Patient Conference and association with leading researchers and clinicians. The Foundation’s commitment to research is reflected through participation in scientific meetings, and its research program that will provide grants to investigators around the world who seek to enhance our knowledge about this difficult group of diseases. For more information, please visit


Sheila Belkin
(310) 475-2419

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